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Posted by: thepinetree on 04/25/2019 04:59 PM Updated by: thepinetree on 04/25/2019 04:59 PM
Expires: 01/01/2024 12:00 AM
:

Please Help Spread the Word to Help a Local Family ~ By Ciera Brooks

San Andreas, CA...This San Andreas family has just found out their son has a rare and terminal disorder. He doesn’t qualify for treatments at Stanford as his condition is too far progressed! With the sudden amount of appointments, therapies, and possibly traveling for experimental treatments - they need help in a big way and I know we can come together as a community. Please help by posting this flyer! Thank you so much! I am just a messenger and I don’t know the family personally their story touched me and I am trying to spread the word so this baby boy can get all the treatment he needs to prolong his life.




From the GoFundMe Bio

Our 2 year old son Killian Christie was diagnosed with infantile Metachromatic leukodystrophy (MLD) this is a very rare brain disorder that depletes the white brain matter that eventually leads to a child not having muscle control anymore.

It is a terminal Illness that is still in it's stages of research for experimental treatment, as of now research shows that our son will probably not live past 5-6 years old.

But as parents we are incredibly hopeful for the experimental treatment if he will qualify...

Killian also has four big sisters and as his father it has been an every day struggle to keep both my daughters and my wife level headed and focused during this time of great tragedy. Working in customer service is becoming quite challenging when everyone wants to greet you with "How are you today?"

We are reaching out to kind hearts that understand that chasing these experimental treatments will be very expensive, and also time consuming because some are located in other countries. It's becoming harder and harder to hold down steady jobs when you have a new doctor to see every week.

But even though our sons diagnosis is terminal, I refuse to give up hope. The treatments being developed will prolong his life and to me, every moment I can have with my son is worth it. And regardless of how Killian's Journey ends we find some comfort in knowing the research knowledge they will gather from our boy will help to develop treatments and one day, a cure.

To anyone reading this, you have a chance to truly make a difference with us, our family has been devastated by this and we just want to give our son the best time he has left on this Earth...

From me, my wife, our 4 daughters, and our beautiful baby boy,
THANK YOU!!!


Comments - Make a comment
The comments are owned by the poster. We are not responsible for its content. We value free speech but remember this is a public forum and we hope that people would use common sense and decency. If you see an offensive comment please email us at news@thepinetree.net
So Sorry
Posted on: 2019-04-25 17:21:29   By: Anonymous
 
So very sorry this family is going through this difficult challenge. Stanford is an excellent, progressive facility - praying for the best outcome for all.

[Reply ]

    Re: So Sorry/\/\ Agreed
    Posted on: 2019-04-25 17:27:50   By: Anonymous
     
    Yep. I agree with you. I also shared this on Face Book so maybe there is some hope! Prayers.

    [Reply ]

    Re: So Sorry
    Posted on: 2019-04-25 19:31:27   By: Anonymous
     
    At the top of the page it says this: "He doesn’t qualify for treatments at Stanford as his condition is too far progressed.) Then at the bottom of the page it says they are looking at treatments in other countries.

    [Reply ]

      Re: So Sorry
      Posted on: 2019-04-26 20:28:48   By: Anonymous
       
      Thanks ObamaCare.... and the death panels.

      [Reply ]

No Subject
Posted on: 2019-04-25 19:16:27   By: Anonymous
 
Prayers for the child and family but man, who writes this stuff. Financial "restraint?" It's like there's a whole different world of English in Calaveras County.

[Reply ]

    Re: /\/\ Financial restraint?
    Posted on: 2019-04-26 13:42:12   By: Anonymous
     
    Meaning?

    [Reply ]

No Subject
Posted on: 2019-04-25 19:27:58   By: Anonymous
 
Reach out to St. Judes....

[Reply ]

    Re:
    Posted on: 2019-04-26 00:23:33   By: Anonymous
     
    St Jude’s does not bill families. Good suggestion!


    [Reply ]

No Subject
Posted on: 2019-04-26 05:35:16   By: Anonymous
 
How sad this all is. Someone mentioned St Judes and that sounds like an excellent place for you to go to regarding making your decisions. I hope your son does not suffer for the hard choices you make regarding his condition, and the doctors do know of a promising treatment that is somewhere.

[Reply ]


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